Prime Minister Ana Brnabic met today with representatives of the Association of Spinal Muscular Atrophy (SMA) Patients to discuss activities aimed at improving the position of patients with rare diseases.
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State helps treatment of patients with spinal muscular atrophy
Belgrade,
28 May 2021
The meeting was also attended by Minister of Health Zlatibor Loncar and Director of the Serbian Health Insurance Fund Sanja Radojevic Skodric.
Prime Minister Brnabic underlined that the state will do everything to help the people suffering from SMA and it was agreed to form three commissions charged with monitoring the treatment of those suffering from SMA.
Representatives of the Association praised the efforts of the state to provide therapy with sprinraza, and for not stopping the therapy for the patients at any time despite the COVID-19 epidemic.
Introducing one more therapy that has been approved for all types and all ages was discussed, and including more patients in the treatment with one of the two therapies available.
Representatives of the Association and of the Serbian government reached an agreement to continue working together on providing the best possible treatment conditions for SMPA patients.
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